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Due to the nature of Teo’s disease, he’s in need of continuous surgical treatment to gradually remove the growth piece by piece. Most likely he will also need treatment with the use of tissue expanders, and then specialized lasers. Teo has years of intensive therapy and multiple operations ahead of him.
Teo’s delivery and the first two operations were funded by the National Health Fund (Polish national health insurance-NFZ in Polish) via the EU's form E112. Our intention is to continue funding Teo’s treatment this way. Unfortunately, for various reasons it is not always possible. The last operation, which cost amounted to more than 4,000 euros, we had to cover overselves. Thanks to cooperation with the Polish charity Foundation for Children "Help on Time '’ (Fundacja Dzieciom “Zdazyc z Pomoca) we have a chance for a reimbursement of the cost of treatment.
Funding by the Foundation requires the presentation of invoices and bills, which, after verification shall be reimbursed from funds in our sub-account.
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May, 2010 |
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National Health Fund (NFZ in Polish) grants funding for next the ten operations under the EU's form E112. To obtain NHF (NFZ) consent for treating Teo abroad we had to go through numerous consultations with the Polish doctors. |
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April 25, 2010 |
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Consultation with prof. Waner in Berlin to determine further steps of treatment.
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March 11, 2010
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Removal of stitches in Berlin. Returning home. |
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Third surgery in Berlin. Resection of part of the eye and nose, which were covering the right eye. Removal of the next section of the growth.
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February 24, 2010 |
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Ophthalmologic consultation in Bielsko-Biala. Recommendation to have immediate surgery in order to uncover the eye.
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Consultation with prof. Waner in Berlin to determine further steps of treatment.
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Removal of stitches in Bielsko-Biala.
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February 8, 2010 |
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Returning home to the expiration of funding by the National Health Fund (the Polish national health insurance NFZ)
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Second operation - resection of a large portion of the growth on Teo’s head and taking a small sample for histopathological examination from the birthmark on his back.
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Dermatological consultation with prof. Blume-Peytavi at the Charite Clinic in Berlin. The panel of dermatologists indicated Phacomatosis pigmentovascularis, however, the growth on Teo’s head cannot be classified as a known syndrome. |
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Magnetic resonance imaging (MRI) of the head and spine showed no internal growths. This was the most important test for us to eliminate severe health problems often associated with these types of external growths.
Results of histopathology confirm the presence of cancerous cells, melanocytes with numerous neurofibroma and capillary hemangioma.
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Ophthalmologic consultation revealed that the right eye was most likely not damaged by the growth. |
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January 22, 2010 |
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First operation - resection of a tissue covering the right eye. |
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Teo was delivered via a caesarean section, which took place under general anesthesia. He was born screaming and breathing independently, but after a few moments, as a result of anesthesia, his breathing began to deteriorate, and the doctors needed to support him with the ventilator. He received 6/8/9 points in the Apgar scale and was placed in the neonatal intensive care unit NEO.
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The first meeting with prof. Waner and review of prenatal diagnosis.
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National Health Fund (NFZ in Polish) grants funding for the birth and the first operation under the EU's form E112. To obtain NHF (NFZ) consent for treating Teo abroad we had to go through numerous consultations with the Polish doctors.
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December 16, 2009 |
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After numerous tests, exams and consultations in Poland we managed to get an appointment for a consultation with a vascular surgeon and gynecologist at the pediatric clinic in Berlin, St. Joseph Krankenhaus Center for Vascular Malformations in Children. Unfortunately, they were not able to give a precise diagnosis prenatally.
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During an ultrasound at 28 weeks gestation the OBGYN noticed some abnormalities in the image of the fetus. They saw something unusual in the child's head image. We are grateful to Dr. Bogdan Fender for highly professional and excellent care during the pregnancy. Due to his early diagnosis we could start our race against time.
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