Dear Friends,
Teo (Teodor Naturski) was born -with a lound scream and under the watchful eyes of many, many doctors - on 21 January 2010.
He underwent his first surgery on the second day of his life...
Unfortunately, Teo, looks a little different from other, healthy kids. He has a very large growth and malformations, which occupy more than half of his little head.
He has been diagnosed by doctors with a very rare disease known as Phacomatosis Pigmentovascularis. He has a mixture of birthmarks, hemangiomas, molluscum fibromas along with a few other not so nice things.
Teo’s treatment, mainly surgery, will probably take several years. It requires the intervention of vascular and plastic children's surgeons, consultations and continuous care of ophthalmologists, dermatologists and oncologists, as well as many specialized tests and exams.
So far, Teo has been treated in the only European Centre for Vascular Malformations in Children in Berlin (Zentrum für Vasculäre Malformationen bei Kindern (ZVM)) under the guidance of world-renowned specialists from Germany (Dr. Lutz Meyer) and New York (Prof. Dr. Milton Waner). Unfortunately, the costs of such treatments are enormous.
For Teo this is only the beginning of the road to rebuild his face and try to minimize the risk of cancer - especially melanoma. Fortunately, on his way he has met many helpful and compassionate people. We deeply believe that you too will be able to help our tiny baby boy.
Monika and Wiktor Naturscy
mw@naturscy.pl
tel. Monika +48 668 113 566
tel. Wiktor +48 668 165 112 |